Here’s another example of social media making a difference – well beyond the “feel good” boost of knowing you’re not alone out there. I helped fix up this piece for Nancy Shute of NPR on the way that patients with rare diseases are sharing information, advice and contacts online. Only last week, women with the rare lung disease LAM or lymphangioleiomyomatosis, came together via Facebook to help a very scared young woman with little English and a new, terrifying diagnosis. If you listen to her story and want to know more, do visit the LAM Foundation. I’m biased. I have LAM, and I want a lot more people to have heard of it, so more women are diagnosed early, and get to live.